Tag Archives: Occupational Therapy

Crafty New Me

In 2010, I’d been struggling with my health for some years. I had my diagnoses of Ehlers-Danlos Syndrome and Postural Tachycardia Syndrome and I was doing my best to get on with life. I was working part-time and taking care of my daughter (then 18 months old) the rest of the time. All my energy (and I had very little) went on my daughter and my work. I did nothing just for myself and I very rarely went out. When I wasn’t busy with parenting or work, I was sleeping.

I was fortunate enough to be referred to the Royal National Orthopaedic Hospital for their multidisciplinary Pain Management and Rehabilitation Programme. It was a big commitment as it required me to be admitted into hospital for 3 weeks (home at weekends). It was hard to leave my little girl but I realised that any improvement in my ability to manage my health could only be beneficial to her. My parents were fantastic and brought my daughter in to visit me twice each week.

I learned so much from that programme, and made some wonderful friends (maybe I’ll come back to all that in future posts), but one very important thing I learned was that it’s okay to use some of that precious energy to do something purely for fun. That to save all my energy for others and for work is not taking care of my own wellbeing.

Early on in the programme, the Occupational Therapy (OT) team asked us about our hobbies. I realised I had none. They suggested card-making so I gave it a go.

 
The first hurdle to overcome was being unable to use scissors without spraining my fingers – quite a hazard in paper craft! Being OTs, they quickly sorted that out by prescribing single-loop handled scissors and it was like a revelation! I actually had tears in my eyes as I cut paper for the first time in 4 years. And then I was hooked. It was therapeutic to produce something beautiful. Well, it wasn’t really beautiful but it was certainly something – my very first homemade card. I also found that using pressure gloves and finger splints increased my manual dexterity and helped with the pain of fine-motor tasks.
 
I started to think about all the other things I could do with my new-found skills – and ‘permission’ to spend energy this way. Four years on and I make all  the greetings cards we send as a family (well, except Christmas cards as there are just too many!) I also decoupage and I’ve recently started machine sewing (with lots of help from my very clever Mum). At Christmas, I print wrapping paper and gift tags with my daughter – she LOVES to craft so it’s a real joy that we can do it together (although it does mean a rather fluffy glue-stick and glitter everywhere).
 
I also enjoy a very active social life – well, lots of chatting over cake, if that can be called active! 
 
With chronic pain and fatigue, even fun is exhausting and can have its consequences for the next day but learning how important it is for my mental health was a really important lesson and I now take enjoying myself very seriously.
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